Our client was responsible for collecting data on newborn babies with Sickle Cell Disease and Thalassemia. The programme’s funding was running out and responsibility was being moved to PHE from the current supplier.
There was no defined process or SLAs for sending the data to the newborn outcomes team and the fact that the programme was run on a spreadsheet resulted in a manually intensive way of operating.
It was not mandatory to send data to the programme and was a very small dataset that relied on the goodwill of clinicians and scientists who sent the data.
We iterated our approach through a series of sprints gathering information through interviews, workshops and contextual enquiries with key stakeholders. To ensure we understood of the human impact of our work we engaged with charities for advice on Sickle Cell Disease and Thalassemia cases. We also conducted workshops with specific key roles in the programme, in order to validate findings and to understand the desired vision for the programme in future.
- A consolidated view of the prioritised list of requirements, taking into account highlights and pain points of current roles in the context of the end to end common processes used in the programme
- Recommendations report, detailing a series of potential options for the programme in the future
- Visibility of the variances that exist within process, region and role